Participatory research is now well-established as an approach; however, it can raise some unique and challenging ethical issues. This book introduces the key ethical concerns in participatory research before presenting seven thematic chapters, covering issues such as power, ownership, confidentiality and boundaries. The chapters each give an overview of the topic and include four real-life case examples written by people involved in participatory research along with a short commentary on each case. The case studies draw on a global selection of research projects concerned with health and social well-being. This comprehensive volume is an invaluable resource for all participatory researchers.
Sarah Banks is Professor of Applied Social Sciences, Department of Sociology and Co-director, Centre for Social Justice and Community Action, Durham University, UK.
Mary Brydon-Miller is Professor of Educational Leadership, Evaluation, and Organizational Development, College of Education and Human Development, University of Louisville, USA.
Chapter 1. Ethics in participatory research
Chapter 2. Partnership, collaboration and power
Chapter 3. Blurring the boundaries between researcher and researched, academic and activist
Chapter 4. Community rights, conflict and democratic representation
Chapter 5. Co-ownership, dissemination and impact
Chapter 6. Anonymity, privacy, and confidentiality
Chapter 7. Institutional ethical review processes
Chapter 8. Social action for social change